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SUPPORTING PEOPLE WITH GYRATE ATROPHY

ABOUT US

We are a non profit organization with the purpose of giving support to people suffering from gyrate atrophy, sharing the hope of preserving vision. 

Our goal is to inform the family members about the disease and its treatment, make the medical community aware of the existence of gyrate atrophy, and obtain statistical information about gyrate atrophy in Mexico in order to encourage research about it.

  OUR MOTIVATION

We know that living with Gyrate Atrophy is not easy; reading with magnifying glasses, carrying a lamp to see at night, not being able to drive, not being able to distinguish the faces of people in more than 3 meters from you; truly is a challenge of daily life.

Therefore, we are concerned that you have a monitoring of your disease, and that your visual quality does not continue deteriorating;  likewise, see the possibility that your entire body works in the right way.

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MEET OUR TEAM

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Dr. Rodrigo Matsui Serrano

Assistant Professor of Ophthalmology. Institute of Ophthalmology Foundation Conde de Valenciana National. Autonomous University of Mexico. Post-doctoral Research Fellowship, Retina - Inherited Retinal Degenerations,
Scheie Eye Institute, University of Pennsylvania, 2014-2016.

LinkedIn: 

https://mx.linkedin.com/in/romatsui

Dr. Juan Carlos Zenteno

Medical Surgeon graduated from Universidad Juárez Autónoma de Tabasco. He completed the Specialty in Medical Genetics at the General Hospital of Mexico. Master's Degree (1999) and Doctorate (2004) in Medical Sciences at the National Autonomous University of Mexico.

More information: 

https://www.premiorubenlisker.mx/jurado/carlos-zenteno/

Dra. Linda Alejandra Cernichiaro

She studied Medicine at the University of Guadalajara, specialized in Ophthalmology with the Subspecialty in Retina and Vitreous in the Association to Avoid Blindness in Mexico. International Fellowship in Pediatric Retina, Bascom Palmer Eye Institute- International Council of Ophthalmology. She currently works at the Angeles Hospital in Mexico City.

MD Juan Manuel Jiménez-Sierra

Chief of Electrophysiology and Psychophysics Service of Retention of the Association for the Avoidance of Blindness in Mexico, Hospital "Dr. Luis Sánchez Bulnes" and Physician assigned to the Retina and Vitreous Service. Professor of Postgraduate in Ophthalmology and the specialty of Retina and Vitreous. (UNAM) Graduated from the School of Medicine UNAM (1975-1980). He performed the specialty of Retina Electrophysiology at the University of Southern California (USC) at the Doheny Estelle Ophthalmological Institute (1986-1987).

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Dra. Rocío Blanco Garavito

Chief of Clinical Assistant Specialist in Ophthalmology CHI Créteil - Reference Center for Rare Diseases - Macula Referendum GRC. Retina Medical Scholarship, CHIC Créteil, Créteil, France University Diploma "Exploration of Visual Function" Paris Diderot University.

Montserrat Mena Macari

Master in Psychotherapy by the Universidad Iberoamericana Puebla and the Pontificia Universidad Javeriana in Bogotá, Colombia (2017). She specialized in accompaniment from artistic mediation in work with groups by the institution Conciencia y Artes Escénicas, Puebla (2018). Since 2019 she is an active member of the Mexican School of Psychodrama and Sociometry in Mexico City.